McCullough et al. (doi: 10.1542/peds.2015-0624) offers an ethical backbone to help us disclose results to families who have sequencing performed on their child. This special article guides us through the process of how to recommend sequencing and then discuss the results and implications using core concepts of medical ethics. Adding to this article is an accompanying commentary by geneticist Dr. Leah Burke (REF) that provides insight into how sequencing will become more and more integrated into the care we deliver.
Read the article and commentary in sequence and you’ll probably find yourself referring back to both as genomic sequencing becomes more and more a part of primary and specialty care practice.
- An Adoptive Parental Perspective on Personal Genomic Screening
- Genome-Wide Expression Profiles in Very Low Birth Weight Infants With Neonatal Sepsis
- Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of Parents